DOUBLE DIPPING

Coming home from a bilateral mastectomy is an event — not of the red-carpet, Oscar-worthy variety, but an event none-the-less. I was happy just to smell fresh air, see the sun, sit in traffic. I was going home.

And that's when the party got into full swing. No guests yet (just our two furry barking machines). And yup, a few pretty floral arrangements. But what I was most stoked about were all the accoutrements on my bedside table (see Step No. 5 for post-surgery boudoir table tips). Snacking in bed? Never do it, but bring it on! Watching TV while the sun is still out and I’m still under the covers? (Yeah, baby!) Pain medication? (Par-tay!) Remote control all to myself? YES! Husband feeding me because I can’t use my arms or bear any weight? (OK, that one didn’t actually happen.) But it was a comical side show just getting me in the bed (forget about getting me out of it to use the bathroom). I’m tired just thinking about it.

Lucky girl that I am, Husband has taken two weeks off from work to take care of me. He’s even placed a bell on the nightstand should I need anything. I rang it once. He didn't hear it. Well. It's. The. Thought. Right?

What I remember most about those first few days home were all the odd sensations. I felt supremely uncomfortable. Frustrated. Sweaty. And smelly. And I can’t take a shower until my drains come out. Have I mentioned my lovely drains? Allow me to paint the picture again ('cause they're just so dang much fun). I’ve got four thick-like-a-straw tubes hanging off me, and they each connect to a bulb into which fluid drains. I preemptively bought a Marsupial pouch belt (see Step No. 7), which was an awesome solution: I tuck two bulbs into one soft terrycloth pocket, two bulbs into the other, and my pain pack in the pouch in the middle. (Bought four pouches but only use three on the belt). Oh what a sight. (See purty picture above.)

Husband has been tasked with emptying said drains and measuring their fluid outtake. Actually, he volunteered. (I think.) He’s normally a little squeamish but is handling the drains with surprising aplomb. I won’t go into further detail because, quite frankly, they are icky and gross and I’d rather not relive it. You can thank me now.

Am I in pain? Yes, but mainly because of the drains. They are poking out of my sides. They hurt more than the mastectomy (my pain pouch is working its magic there). I guess the worst part of it all, so far, is the pressure I feel, which can only be described as this: Imagine having two coconut shells (sans the hairy stuff) wired to your chest wall. Then imagine being engulfed in gauze and zipped into a very [un]sexy compression vest. And then wrapped up some more in a fat ace bandage. It's freakin' weird.

(Copyright ©2011 Rennasus)

Because of (or despite) all this, and because I am a good and compliant patient, I take my meds right on the button. And since I am married to a pharmacist, that means he has the pill deal covered. He delivers my capsules and tablets bedside (though I like to imagine it more as poolside), with a glass of water, exactly at the time I need to take them.

But he neglects to tell me ahead of time that this is The Plan.

Now normally upon awakening, I do what I always do: I take a Synthroid tablet. Which is exactly what I do my first morning home. (Remember, I am unaware of The Plan.) Husband hears me stirring and comes in right away to check how I'm feeling. I don't even see him counting out pills; but he folds a few into my hand and gives me a glass of water. I notice there are some different pills in the pile (pain meds and Colace and such) than I normally take. Unfortunately, I don't notice that there also is a Synthroid tablet. In my post-anesthesia brain fog, one plus one only equals one.

So. Yup. Took a double dose of Synthroid. That is not recommended. By the time I realize I've taken mine and his, it's too late. I do have a bit of an emotional meltdown thinking I've just tried to kill myself, but Husband assures me that I will not die from taking two. (I may feel a little warm and fidgety, however. And he would be correct.)

I spend the remainder of the day in a hot flash haze, wearing washcloths dipped in ice water as scarves. And yes, I felt revved. But I also slept a lot. By evening, my double-dipping had worn off.

I stopped worrying about taking my meds after that. Decided I would leave that up to the professional. I just relaxed and became [a] patient.

WATERWORKS

My room is ready. (Wish it were overlooking a tranquil sea instead of in a hospital, but I'll take what I can get.) After 4 ½ hours of surgery and five hours in recovery, a room without a view sounds pretty darn good right about now. At least it's private.

A male nurse arrives to take me upstairs (what floor, I couldn’t tell you). Despite my post-surgery brain fog, I find it a little odd that he's the only one assisting in my transfer (besides my husband, that is). As I’m wheeled backwards into the elevator, I suddenly feel emotional. I close my eyes and let the tears roll silently down the sides of my cheeks.

Then BAM! The magnitude of the moment finally hits me. Just. Like. That. Up until surgery, I've been able to focus on a single thing at a time, placing one foot in front of the other. I had tunnel vision, and I liked it. But with surgery now complete, I'm left to face my new reality. And I have absolutely no idea what that looks or feels like.

We reach my room and I'm still quietly crying. Like a leaking faucet. Can't turn the waterworks off. (This time I don't even try.) The lone male nurse raises my gurney so it’s the same height as my hospital bed. Then he asks me to move myself over. Yup, you heard me right — he is not planning to slide me over using a sheet, he is asking me to move my fat fanny from the gurney onto the bed. Myself. After I just had major surgery. 

I can’t. How do I do that without using my arms or pulling on my chest? Why can’t someone else help? Where are the other nurses? Why is he asking my husband to spot him? Are they really that short-staffed?

I'm not sure how much of the above I actually verbalize (parts, but definitely not all). And there stands my fabulous husband, encouraging me to "just slide over," saying it’ll take a few seconds and then it will be done. I glare at him. Whose side is he on here? But I haven't the energy to fight. He's right. It will only take a few seconds, but why should I have to...? Before I can even finish my martyr-lovin' thought, I do a one-two-three shimmy off the gurney and onto the bed (with their help), crying the entire time. In part because I’m in pain, natch, but mostly because I’m a freakin' emotional mess. Yet this doesn't seem to faze the nurse, nor my husband. Huh?

I'm caught so off-guard by the wall of rage that is building inside me that I cannot hold it back. (Kinda like retching in the recovery room.) My feelings are overripe. Oh no. Lower your lids, this ain't gonna be pretty.

“Don’t you people understand what I’ve just been through?!” I scream the words, surprising even myself with my ferocity. (The male nurse spins the gurney out of the room so fast I think he left tread marks.) My husband looks startled. He’s never heard me lose my cool like this before. N-e-v-e-r. But the raging isn’t over. 

“I just had my breasts cut off!" I continue screaming (and don't care who hears me — so unlike me). "Don’t you get it? Do you know how hard this is?” My voice is horse. 

All the raw, suppressed emotion of the past two months shoots out of me like loose gunshot, hitting anything and everything in its angry path — in this case, my poor husband.

“You're a very strong woman,” he says calmly. “You’ve been so strong through all of this.” 

Lest he think I don't know it, I take the opportunity to tell him. "I am strong!" I yell back. Then, with more than a trace of vulnerability: "But I can't be strong anymore." I'm sitting in a heap of sheets. He leans in to give me a hug (not easy to do given the IV and the pillows and the bandages and my semi-reclined position). 

I wish I could say that releasing my emotions made everything better, but that would be a lie. The pain — physical, mental, emotional — has only just begun.

RETCH & RECOVER

I hear a woman’s voice. She’s calling my name. Everything else is like peach fuzz. I try to bring her into focus but I’m laying on a gurney. In a room much like the pre-operative one, with a nurse’s station directly in front of me. Have I even had surgery yet? I’m confused. Thoughts float around in my head as though lodged in thick, groggy soup. A nurse types something into a computer to the left of my bed. She asks how I’m feeling; she takes my blood pressure. I try to force my eyes open, but a familiar sensation interrupts this task. The nurse quickly grabs a pink kidney-shaped basin. Afterwards, I close my eyes. The room spins. Another tidal wave hits. The pink basin remains at my side.

It seems I’m having trouble coming out of anesthesia. I’m aware — acutely — of how tightly wrapped my chest is. I’m snapped inside an oversized, papery purple gown with white bear paw prints running across it. An ace bandage and a whole lot of gauze compresses my new chest, which is now comprised of two temporary tissue expanders beneath my pectoral muscles (since all my breast tissue on both sides has been removed). Dr. C. has filled each expander with 400ccs of saline. The purpose is two-fold: to hold the space left by my now-departed breasts while I heal completely, and to give me a semblance of a chest, so I am not flat-chested after surgery. Both help with healing — the former with my physical healing; the latter with my emotional. In a few months, after the expanders are filled a bit more with saline, I will have a second surgery to remove them and put in permanent silicone implants. 

But for now, somewhere in the cobweb-like recesses of my brain, I remember to check under my right arm to see if it hurts. (Pain means lymph nodes were removed.) Because I can't reach under there, I focus my thoughts on my armpit. But I feel nothing. Yay! Turns out I’m just numb. Dang. I string enough words together to ask the nurse Is there cancer in my nodes? Her response disappoints. “I don’t know, honey. You have to ask the doctor.”

For the next couple of hours, I slip in and out of sleep between bouts of nausea. I can’t have water yet, so my throat is achingly dry. I start to shiver, and a hose is quickly attached to my pretty purple gown. Warm air swooshes all around me, enveloping me, and for a brief moment, I feel peaceful, even cozy. But it’s a momentary respite; my tummy is unrelenting. I'm given Zofran but it does nothing.

I can feel time passing. I fall into an automatic, Lamaze type of breathing — short, quick, rhythmic breaths in an attempt to tame my pain. In actuality, it just gives me something to focus on besides the nightmare I seem to have woken up in. And that’s OK. I’ll take the distraction.

Speaking of distractions, where is my husband? I look around; he’s not here. He’s never been here. Seems the nurses haven’t brought him in to see me yet. OMG. That means he’s been sitting in the waiting room the entire day with my mother and sister. Waiting. Worrying.

I open my mouth but can manage to eek out only two words: “My husband.” The nurse nearby ignores me. So I repeat myself. Still nothing. Oh. I’m only talking inside my own head! I focus hard on saying the words out loud; this time she hears me, and nods OK.

And like in a dream, when I reopen my eyes, my husband is standing beside me. It’s obvious I’ve been going through a terrible time; I look limp and pale as a noodle. (He later tells me that upon seeing me, he went back out to the waiting room and sent my mom and sister home, rather than have them see me like this. Good call.) 

My husband asks the nurse what meds I’ve been given so far, then suggests Ativan, an anti-anxiety medication that also has an anti-nausea effect. My surgeon, Dr. A., agrees with him, saying, “Good idea. Let’s try it.” Within minutes, the room stops spinning. My husband explains to me why: Nausea begins in the brain, not the stomach — which is why the Ativan works.

My husband the hero pharmacist strikes again.

My surgery has taken 4 ½ hours. I’ve been in the recovery room an additional five. We arrived this morning in the dark; it is now dusk.

(Copyright ©2011 Rennasus)

But what about my nodes? They removed several. All were negative. While we won’t know exactly what we’re dealing with until the pathology report comes back in a few days, both surgeons say there were no surprises. They got clean nodes and clean margins. This is as good as it gets. We are happy, despite all the day's drama.

I finally made it to the other side.