Showing posts with label friends. Show all posts
Showing posts with label friends. Show all posts

Monday, March 24, 2014

TOP 10 TIPS FOR A HAPPY LIFE

 © TheBigCandMe.Blogspot.com
I came across a blog post that feels worthy of a repost

Originally written as a letter to my 16-year-old self, these tips apply to folks of all ages — not just to teens. After all, we're never as young as we are right now, right?

I've renamed them RENN'S TOP 10 TIPS FOR A HAPPY LIFE. Sit down, grab a cup o' coffee, and...

Friday, February 28, 2014

CYBER SUPPORT

My first blog logo, circa April 2011
It's been nearly three years since my first blog post hit cyberspace. It was April 2011, and I was in the thick of my frustration, anger and sadness following a breast cancer diagnosis. If I didn't write down what I was feeling, I thought my head would explode. Blogging became a natural way for me to process my cancer "situation."

I wasn't always aware of what I was dealing with; enlightenment often came after I hit the "publish" button. Writing is weird that way...

Monday, November 4, 2013

KVETCHING CORRECTLY

Who among us hasn't experienced the awkward moment when a well-meaning person utters something inane (or insane) in response to our discussing our cancer treatment or diagnosis (and/or our mental, physical or emotional processing of the two)? You know, the verbiage that doesn't stay inside their head but is inappropriately spilled out onto yours. And you, as the cancer patient, are left feeling unheard, misunderstood, and thinking, Did he/she really just say that? 

Friday, September 6, 2013

3 REASONS FRIENDSHIPS FADE POST-CANCER

(Copyright © 2013 The Big C and Me)
I wrote a blog post back in January 2013 about how our relationships change at various points during our cancer treatment, how the demands on our time changes, and how this can leave us feeling invisible. It struck a chord with many, so I thought it might be important to post again. Maybe you (or someone you know) can relate...

Monday, July 22, 2013

RENN'S TOP 20 BLOGGY IDEAS

(Copyright © 2013 The Big C and Me)  
While I've been busy not blogging, I've been amassing a large number of potential blog posts. Some are half written; others are merely a headline. Some describe experiences I've had yesterday; others occurred long ago. All include insight gleaned from my breast cancer experience. 

This bulging list of ideas overwhelms me...

Thursday, February 28, 2013

OF FUNERALS AND FRIENDS

We had a death in the family. My husband's only sibling died suddenly three weeks ago. He was not young; he was not old. He was middle aged. And his death sent shock waves throughout the family. 
(Copyright © 2013 The Big C and Me)
Which reminded me that the rituals surrounding death, while varied, exist for a reason: Society has been following mourning rituals for thousands of years — because they work. No matter what those rituals are, they're important, and they're in place to help soften death's blow. These traditions have vast intrinsic value in helping to push us gently along our own pathways of grief...

Wednesday, April 25, 2012

OUR LADY WITH CANCER

It's Day 25 of the WEGO Health Activist Writer's Month Challenge and I'm to tell you a memory — but I have to write it in the third person. Here goes!

There is a woman, a very private woman (let's call her "Our Lady With Cancer") who felt oddly ignored during and after her breast cancer "experience." And it seems Our Lady With Cancer brought it all on herself. How so? In choosing not to tell everyone on earth about her diagnosis, she cut off a large lifeline of people that could have made her journey so much easier. 

You see, coming out publicly about having cancer is not in Our Lady With Cancer's blood. She is diligent about keeping references to her health off of Facebook. To her "friends" not in the know, they would never know what she is really going through. And that's the way she likes it. She continues to post pretty pictures and comment on others' FB posts, but she keeps the biggest secret of her life to herself — an attempt at controlling an uncontrollable beast.

She tells the people who need to know — the people she is closest to, her family, the folks she trusts. But she can't handle the thought of being talked about or rejected during this very vulnerable time. So she continues to keep "it" quiet.

She also tells a select few people who are large cogs in her social wheel... people she knows will get the word out. She doesn't want to have to say "I have cancer" too many times. She knows if she turns on the faucet, they will come to the trough.

So it comes as quite a shock when Our Lady With Cancer's pool of support slowly dries up in the weeks and months following her bilateral mastectomy. Though she doesn't talk about "it" on Facebook, she is still surprised when no one addresses her dance with cancer — publicly or privately.

Even members of her extended family are strangely silent. How can this be? She imagines how some would handle a cancer diagnosis — how it would be all they talked about, every detail dripping in drama, drama, drama.

Well, be careful what you wish for, Our Lady With Cancer: You never wanted too much attention, and so you never got it. Our Lady begins to question her worth as a friend, a family member, a patient, a human being in need. She struggles with asking for help when help has never been offered in the first place. The fear of rejection is stifling her vulnerability. 

One day she goes to lunch with a friend (who is also friends with one of the "cogs") and is shocked to learn said friend doesn't know she has cancer. WTF? Our Lady With Cancer emails another former friend — and finds that person similarly shocked. Turns out the cog has kept quiet — respecting the very privacy that is so beloved by Our Lady With Cancer. (Well, what do you know about that!)

Our Lady With Cancer attends a baby shower. The room is packed with people. She decides not to keep "it" a secret any longer. She will openly and gladly talk about her breast cancer experience with anyone at the party who asks. Yet, remarkably, no one does.

But this time, she is not silenced. Our Lady With Cancer brings "it" up. She shocks many in the room that day. Jaws drop left and right. She talks about her fears, her cancer, her reconstruction. In fact, cancer is all she talks about. When she leaves the party, it is with a newfound (and hard-won) freedom. And a lightness of being. An almost unbearable lightness of being.

Now Our Lady With Cancer mentions "it" whenever it is appropriate. On the hiking trail, she falls into conversation with another hiker and tells him she is recovering from breast cancer surgery; he in turn tells her about a close friend with breast cancer who just completed the Ironman. At a farmer's market, Our Lady With Cancer asks for help to her car because she cannot carry heavy bags after her double mastectomy; the woman helping her reveals her own battle with stomach cancer. 
Our Lady With Cancer is no longer afraid to talk about cancer. And she realizes an old school truth: People are not talking about her. They are not focused on her. They are focused on themselves.

After a friend is diagnosed, Our Lady With Cancer emails — expressing concern and revealing her own cancer. The woman writes back, "Yes, I know. I heard." Our Lady With Cancer understands that people do not always know what to say to people who have cancer. Especially private people who have cancer.






Tuesday, April 10, 2012

10 TIPS FOR A HAPPY LIFE

Day 10 dawns on the WEGO Health Activist Writer's Month Challenge, and I have been asked to write a note to my 16-year-old self. This one took some brain cells, I'm not gonna lie. But Day 10 deserves 10 tips.

Dear 16-Year-Old Me,
This Road Called Life has so many jaw-dropping turns and dead-ends that it's really, really good you can't see any of them from where you are right now. Ignorance in this case is absolutely, positively blissful. While The Path cannot be changed, you can alter the amount of baggage you bring on this journey. To help, here are my 10 Tips for a Happy Life:

TIP #1 Appreciate your physicality. You won't always look this good, feel this good, be this flexible, be this thin, or have such perfect skin.

TIP #2 Stay true to you. The teenage you is the same you as the you you were in elementary school (stay with me here). The teenage you is also the same you that you become when you're older (and supposedly wiser). Never lose sight of her. The good news is, the young you is your beacon and your compass when the stormy seas arrive; she always knows what makes you happy. She also always knows the people and things you can trust. The bad news? She doesn't always know what's best for you. (That's why you need Tip #3.)

TIP #3 Develop a strong backbone. Define what is important to you and then follow your instincts. For example, if you're certain that marriage and family are what you want, don't waste your prime childbearing years in the wrong relationship. (I'm just sayin'.) If you don't want to give your life over to your work, don't give up all your hobbies and then blame your lack of them on the fact that you don't have the time or energy because you're always working.

TIP #4 Say NO more often. (This becomes easier after you have mastered Tip #3.) People-pleasing skills are highly over-rated.

TIP #5 Cultivate a rich network of supportive friends, particularly those with varied interests and ages. That way you're not left scrambling for new social groups when everyone does (or doesn't) get married, or has (or doesn't have) kids. Build yourself a nice support network on which to fall back on; you'll need them to catch you when you fall. And you will. Oh, and remember that in order to have a supportive friend, you have to be a supportive friend.

TIP #6 Exercise every day. But not obsessively. Find things you enjoy and do them daily. Working out will keep your weight (and your stress level) down, your hormones in check, your mood more balanced — and your jeans in single digits.

TIP #7 Be conscious about what you ingest. Again, no need to be obsessive; just be smart. Your food should be of good quality, not processed, nor laden with chemicals or pesticides. If you're going to drink alcohol, have a glass of water before every drink. And please don't drink on an empty stomach. Or smoke!

TIP #8 Don't worry so much about what other people think of you. Because guess what — they're not thinking about you. They're thinking about themselves. So ditch the worry and just be yourself.

TIP #9 Kindness is king. Embrace what you love about you and don't get down on yourself for what you don't. Always, always, always be kind to others — but be especially kind to yourself. Always, always, always choose a mate that is kind to others — and who is especially kind to you.

TIP #10 Keep your naturally positive attitude and sense of humor. You're gonna need it.


Sunday, January 1, 2012

THE RUBIES

In the spirit of a new year (and inspired by my blogging pal Marie's thought-provoking queries), I want to open 2012 with a question. Anyone reading this post has either been diagnosed with cancer or knows someone who has. It doesn't matter if you are in the former or the latter group; our collective world is shattered and splintered by The Big C.

But among the fallout and the rubble of cancer come The Rubies — the people who keep us grounded, or safe, or sane, or distracted, or engaged during all the rolling ruckus.

The Rubies are there at the right time, in the right place, and we have the foresight to recognize them as the rare gems they truly are.

As a person dodging the minefield of cancer, I am fortunate to have many Rubies. And without the internet I would never have "met" the majority of them. I count among my Rubies the courageous cancer bloggers who are telling their tale with honesty and humor and bravado. They paint a deeper, fuller, more complex and truthful picture of cancer in all its crazy colors — and we all can benefit from their wisdom. I feel stronger and less alone in my struggles because of them. And so I say thank you to the women and men of the blogosphere.

I also am lucky to have Rubies in the form of a group of women I met online at BCO. We are seven in total, and range in age from 27 to 53. We all were diagnosed with breast cancer at the end of 2010. Five out of seven of us had bilateral mastectomies; one had a single mastectomy; one had a lumpectomy. Three had chemotherapy; five are on Tamoxifen. No one lives near the other (though some ladies did manage to meet in 2011) and I have yet to meet these fair maidens myself, but we "talk" every day. They are my lifeline, my sanity, and my strength. And so to my six Rubies, I say thank you for always being there. I couldn't do this journey without you.

But getting back to you, dear reader: Who was/is your Ruby when you were dealing with The Big C in your life?

Monday, October 24, 2011

PATH TO THE REPORT

Let's talk food and conversation post-surgery — specifically, food delivery by friends and family while a patient (that would be me) is recovering. 

The people, they come with the meals. As in, they bring over the food, they sit down and they eat it with us. 

Perhaps this is peculiar to my circle of loved ones; my family lives thousands of miles away, and two out of my three siblings (plus my sister-in-law) have traveled to see me post-surgery. My husband has taken off work to take care of me, so I don't really need (or want) anyone staying at my house. Lucky for me, they all stay with my Mom.

But let's get back to mealtime...

Thursday, June 2, 2011

PRE-OP ROAD TRIP

My datebook tells me I have a lot to do today before I head to Las Vegas tonight. I wish I could say I am taking a trip to take my mind off my upcoming surgery (while that is a side benefit, it's not the real reason I am going). Instead, I am accompanying two BFFs and one BFF daughter, the latter of which is competing in an athletic event in Vegas. And a road trip sounds soooo good right about now.

          First things first, though. I pick up my car, which has been in the shop due to a broken automatic-window-control thingy. Then I stop by the dentist to cement a crown and get my teeth cleaned. For some unknown reason, I decide to tell the hygenist I have breast cancer and of course I start to cry. (And no, I really didn't see that one coming!)

          Next up: my pre-op appointment with my internist, Dr. S., in preparation for my January 19th lumpectomy. But he is not in today. Instead, I see a doctor I've never seen before. She greets me in 3-inch heels and carries a folder with the pathology report from my biopsy in her hands. She glances down at it and says (quite casually), "So, you'll be having chemo then?"

          Me: "WHAT?"
          Daffy Doc continues: "I see you are estrogen negative."
          Me: "No, I'm not! I'm estrogen and progesterone positive — I'm HER2 negative!"
          DD: "Oh, I must have read that wrong." Pause. 
          DD (again): "I see your BRCA test is negative."
          Me: "WHAT? That can't be back yet. It's too soon. Are you sure?"
          DD: "Well, that's what Dr. S. typed it in here. Why would he type it in if it wasn't in?"

Now my blood pressure is on the rise. She asks me a few real questions (not inane assumptive statements) and then a nurse comes in to draw my blood and run an EKG. I'm handed a referral for a chest Xray (which I have to get at another location on the other side of town). On my way out, I ask the nurse at the front desk for a copy of my BRCA results. Guess what? They can't find them. The nurse that drew my blood pipes in: "I haven't seen any BRCA test results come in yet." Really? How surprising.

          I wish medical professionals would be a tad more sensitive; these tests, these stats, are a VERY big deal. And when my info is treated nonchalantly like this, it makes me feel whittled down to a bare nub of a patient — just a number on a chart that can easily be misread. Not on my watch. This is MY life we're talking about!

          I look at my cell phone and realize I have barely enough time to get the chest Xray and then get home to make dinner before my BFFs arrive. We have a quick bite, hop in the car and steer it towards the freeway. We laugh, we joke, we sing, we break a tail light.  BFFs are great!

          We roll into Vegas exhausted, and plop down onto our big, comfy pillow-top beds. Oh yeah, this is exactly what I need.


Sunday, April 24, 2011

NEW YEAR

I began this blog several months into my journey with breast cancer. Didn't feel like talking about it (much less writing about it) back then. And as I've mentioned in posts prior, my husband and I kept the news to ourselves until January. We hurried through the Christmas holidays in a hushed haze, then squeaked past New Year's by the skin of our teeth. Here's what happened.

A few weeks before the holidays, we go out to dinner with our core group of friends — five couples who spend every New Year's Eve together. The discussion quickly turns to what we are going to do for the big night. My husband and I have already decided we are going to sit this one out. There is no way I can pretend to be happy, in front of friends, about a new year that is ushering in a dirty little secret — we hadn't let the cancer cat out of the bag yet. 

Our friends don't understand our sudden desire to spend New Year's alone. My husband takes the curmudgeon hit, saying he can't bear to sit in a noisy, over-crowded restaurant for hours on end and would rather just stay home. They think he is getting old and crotchety (who isn't?). And of course they try to convince us (as all good friends will) to come along, or do something other than dinner. They promise we'll have a blast and say we're silly for sitting at home when we can do that any night of the week. After all, man, it's a new year!

Exactly.

The pressure is daunting. Everyone wants us to hang out with them but I feel like I'm drowning. (Can I get a life jacket over here? Please?) But we stick to our guns, and though our friends think we've gone a little bonkers, they ultimately respect our desire for a "romantic evening" alone. (Ha.)

New Year's Eve goes out the way it came in — quietly. We watch the ball drop, try not to think about the ball of anxiety that's been dropped in our laps, and go to bed.
Our friends post pictures on Facebook of what looks like a fab New Year's Eve, with dancing and drinking and goofy noisemakers. It really does look like fun. (And it really doesn't look like they miss us.) 

In hindsight, our little white lie has left a pretty bad taste in my mouth. If I had it to do it over again, I would:

1) Tell my friends and family sooner rather than later. 
2) Gladly put my poker face on
3) Toss back a flight of champagne 
4) Toast to a Healthy New Year
5) Be happy I am able to do any and all of the above.

... because soon enough, I'll have more days and nights sitting at home than I care to count.

(For more, see Finding Support.)


Monday, April 18, 2011

HIKE THERAPY

After I hear the "C" word from Dr. S., there are two friends that I need to tell — the only two people besides my husband who are even aware I have had a biopsy. I reach both of their voice mails. Hmmm. I know P.  will call me back when she sees I didn't leave a message — she knows I'm on pins and needles waiting for "the news." But my gut tells me to leave K. a message, a light-hearted one. So I do. Then I sit down on the couch in the living room and wait. (I guess I don't want to get too comfortable by sitting in the den; after all, cancer is a very uncomfortable topic.)

I can't cry, though I try; I'm too terror-stricken. I just sit there, completely dazed and confused, and wait for the phone to ring. The hours tick by: first One. Then Two. Then Two-and-a-Half. For 2 1/2 hours I sit on the couch, waiting, as though by freezing myself I can alter the course my life is about to take.

The phone rings — once. It's my husband, not P or K. We talk about dinner and I hang up fast.

Then I call P. again. Still no answer. Why aren't they calling me back? Are they afraid to talk to me? Do they not know what to say? They couldn't have forgotten I had a biopsy, could they have? 

My mind is conjuring up all kinds of crazy scenarios. But I'll explode if I keep this news to myself much longer. So I lace up my sneakers, throw on a sweatshirt and do the only thing I know will clear my head: I take a hike. And I can't believe I have cancer.

I know I'll run into other hikers soon on this popular trail, but for now I am grateful to be alone. I walk up a series of steep inclines that take me to the top of a magnificent hill. The view is amazing... mountains and mountains for miles and miles. The warm breeze and late-afternoon sun feels so good against my skin. I stop and gaze into the distance, trying to etch the visual image into my brain. I can't believe I have cancer. 

Then I hear voices. Really. Loud ones. I turn to see three women yakkity-yakking as they climb the hill behind me. They are with a black and white dog. They say hiello, then continue down a trail I've never taken before. Oh, what the hell, I might as well see where they're headed. I'm in a risk-taking mood. After all, I have cancer. 

These are the actual hikers, on the actual day, that I actually learn I have cancer.
They're walking much faster than me, so I really have to pick up the pace, which breaks my concentration. This is good. I decide that if I catch up to them, I'll tell these three strangers my news: It's been three hours since I found out I have breast cancer, and guess what? You three are the first to know. 

I'm deep in this thought when I hear someone call out, "On your left!" Just a guy on a mountain bike. I let him pass me, and watch as he speeds down the long, narrow trail behind the women and the dog. They can't hear him coming because they are still yakkity-yakking, but thankfully he notices this. He makes a wide turn and passes on their left so he won't startle them or their dog. But something goes awry. Suddenly I see his bike fly up in the air; there's commotion, displaced dirt and plumes of dust. The women quickly form a huddle around him. Though I can't see much from this distance, I can tell he is bleeding.

I jog toward them and as I approach, I see the gash in his forehead. He keeps saying he is OK, although when he tries to stand up he's too dizzy to do so. One of the women gives him her water bottle. I hand him the wad of Kleenex I had stuffed in my pocket when I left the house, in case I started crying. (Who knew someone would need it before I did?)

Then we, the three ladies and I, decide we will walk this man back down the mountain. All hands are on deck: One gal walks the dog. One gal walks the bike. One gal calls 911 so an ambulance can meet us at the trailhead. (She then calls the man's wife so she can do the same.) I carry his backpack, which must be stuffed with bricks because it is so dang heavy. Our little caravan slowly makes its way down the trail. 

We walk, he talks. He tells us he bikes these trails regularly, several times a week in fact, but has never crashed before. (Well, except for that one time when he busted up his knee.) As we reach the bottom of the hill, we tell him it's not such a good idea to go biking alone, 'cause what if he wiped out and we hadn't been there? Blood and coyotes and rattlesnakes do not a happy hiker (or biker) make.

We round the final bend to find his wife and daughter rushing towards us. We also see an EMT truck waiting in the parking lot. We hand off his accoutrements to his anxious family and say goodbye. He thanks us profusely. The ladies and their dog turn around and head back up into the hills to finish their hike. I contemplate following them as I watch them disappear on the trail, but decide maybe it's best not to hike alone twice in one day. 

Then I realize I never did tell them my news. Hiking is strange that way. I have cancer and have already forgotten that I do. This is good.

(See Telling Hubby to continue with my story.)


Monday, April 11, 2011

CURTAIN OF DREAD

Oh My God, I am Going to Die. But don’t I already know this?

Knowing it and facing it: two very different beasts.

Cancer stirs up a big ol' pot of primal fear, that much we do know. And since our minds are programmed to go just a little bit crazy upon hearing the "C" word, it's off to terror town we go. Fight or flight? I’ll take flight please. Except there is nowhere to run to, nowhere to hide. My senses are all kafloozy. If I could cook up doom, it would taste like today.

The word "cancer" ushers with it a crushing curtain of dread that never retracts. Draw back the fabric an inch and you'll find plenty of screams, tears, terror, tissues, less oxygen than is necessary to breath, dizziness, darkness (lots and lots of darkness), a bottomless pit and two massive fists trying to clutch at your throat.

Oh. So this is what it feels like to lose your mind.

For me, it happened immediately after I
hung up the phone with my primary care physician. 

I am in a cloistered place of abject terror, sitting at the kitchen table for what feels like forever (but in reality is actually only about 10 minutes). I remember putting my hand over my mouth (the way you do when you see or hear something so shocking you are unable to process it) and feeling dizzy. the instant I heard Dr. S. utter the word "cancer."

My body had turned into a knife: Every thought and feeling I had, every breath I took, hurt like I imagine a stab wound would. 

But something primal deep inside draws me back to the moment. I somehow gather my wits right there in the kitchen chair and suddenly sift through a mental list of people I should call to tell them I have The Big C. Obviously my husband tops the charts — but that must wait until tonight, as I can't bear to give him this news over the phone while he's at work. 

I set that desire aside.

Next up: My two closest friends, P. and K (the one on the west coast and the one on the east). We three met 30 years ago at a fraternity house party and immediately clicked. We've been through every life event imaginable together. Last week I told them that "No news is good news." I told them I would only call if the news was bad. They assured me all would be well. But this is news. Definitely news. Definitely bad news. 

I call P. at work but she doesn’t answer her cell. I don't leave a message, knowing she'll see that I called and buzz me back (remembering my "I'll only call if the news is bad" pact).

I move on to K. She is also at work, and doesn’t answer her cell either. ERGH! Didn't anticipate this. Can't just hang up though. I think for a second, then put a smile on my face (because I know this will positively affect the tone of my voice) and I leave K a lighthearted message: “Hey! Just calling to check in. Give me a buzz!” I didn't feel it was right to lay out the actual news in a voicemail. I couldn't do that. Call me crazy.

Then I curl up on the couch and wait. And wait. I feel like buckshot in a rifle on the first day of hunting season, waiting for a trigger finger so I can release this fragmented feeling of death.

An hour goes by and I am still laying on the couch, in a sub-catatonic state, when the phone finally rings. Whew! But it's neither P. nor K.; it’s my husband. Crap. Why did I answer the phone? I don’t want to lie if he asks me if I’ve heard from the doctor. Thankfully, he doesn't ask. That may sound weird, but he doesn't want to know the answer any more than I want to give it. So I don’t tell him the news that will soon spoil our dinner. Instead, we talk about what's for dinner.
 

Then I sit back down on the couch and wait for K. or P. to call. (To continue my story, see Hike Therapy.)

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