Friday, February 15, 2013

A POETIC CANCER

(Copyright © 2013 The Big C and Me)
I read a wonderful poem recently about cancer written by Maryland's poet laureate, Stanley Plumly, in the Los Angeles Times. I am struck by it's lyrical, imaginative and original nature, and inspired to write some poetry of mine own.

But not today. 

Instead, allow me introduce you to...

Saturday, February 9, 2013

I HATE CANCER

(Copyright © 2013 The Adventures of OBB)
“Courage isn't having the strength to go on — it is going on when you don't have strength.” Napoleon Bonaparte

I just learned this morning that another blogging sister's cancer has returned: Kate over at The Adventures of OBB. Her husband posted the news this morning.

If you have a moment, please pop over and show her some love.

I hate cancer.

Wednesday, February 6, 2013

IN MEMORIUM

Today is the one-year anniversary of the death of Rachel Cheetham Moro. There will be many tributes to Rachel in the blogosphere today...

Tuesday, February 5, 2013

RASHES AND SCARS AND CANCER, OH MY!

I saw this quote the other day, and in keeping with my last blog post (and subsequent discussion) about feeling invisible, I wanted to share. I'm working on getting rid of a few of my little monsters... ***In other news... if you haven't seen Breast Cancer? But Doctor... I Hate Pink! lately, please stop by and visit Ann's wonderful blog. She has written an important post about feeling abandoned; you can find that post here.  ***And in still other news, I am seeing my plastic surgeon, Dr. C., this afternoon to show him my rash. Yes, the RASH... 

Tuesday, January 29, 2013

FEELING INVISIBLE?

One of the reasons I love reading other cancer blogs is they remind me that I'm not alone in how I feel.  
(Copyright © 2013 The Big C and Me)

I comment on these blogs when I can, sometimes just a few words, but sometimes my sentences turn into missives. And that's when I know I've touched an internal nerve, the one that says, You have to blog about this!

That's what happened this morning. I was reading a new blog by Lisa Quintana, someone I discovered via the Facebook page of the ever-insightful Nancy's Point. Lisa blogs over at...

Tuesday, January 8, 2013

A FALLEN STAR

I am very saddened to hear that Debbi Chapman Dempsey passed away this past weekend. 

Debbi and I connected via our breast cancer blogs. When I started mine in April 2011, I was writing into the ethers — until June 26, 2011. That's the day I received my very first comment on a blog post. And that comment was written by Debbi

Since that day, I followed her blog (aptly named A Too Sassy Gal)...

Monday, December 31, 2012

HAPPY NEW YEAR 2013!

(Copyright © 2012 The Big C and Me)
This marks the 82nd blog post I've written in 2012 (that's twice as many as I wrote in 2011). It's been a good and busy year, and while I have no idea what's in store for me in 2013, I can promise you this: I'll be writing about it. The good, the bad, the uncomfortable and, you betcha: The downright ugly.

This past year has made me reflect a great deal on breast cancer as a whole, and the many ways it taints the many lives it touches. Not just the patient, but ...

Friday, December 21, 2012

STILL NOT A GIFT

It's been a week since my last blog post, the one in which I answered the question of whether or not I think cancer is a gift.

Cancer is still not a gift.

A number of people commented on that blog post, including Ann, who blogs over at the incredible But Doctor... I Hate Pink — and for whom metastasis to her liver means she will never recover. She writes, "If breast cancer is a gift, I'm not exactly crazy about the wrapping paper. My 'gift' looks like a two year old wrapped it, then sat on it." Ann is funny that way. No matter what she is writing about, her pervasive humor seeps into every nook and cranny — every comma, every letter, every word.

But Ann also knows when to get serious, and does so in the rest of her reply...

Wednesday, December 12, 2012

CANCER? AIN'T NO GIFT

My blogging friend Nancy over at the always-insightful Nancy's Point is revisiting the ever-present query of whether or not cancer is a gift. That got me thinking. Is cancer a gift? 

My Big Fat Cancer Adventure began two years ago, when I really did get
Cancer for Christmas. But I'm not seeing that shimmer (or is it glimmer?) of warm and fuzzy light at the end of the proverbial cancer tunnel. Every time I round a bend on The Big C Highway, there's a new roadblock in my way, another hurdle to climb over, another hoop to jump through. It is never ending and, as the great Gilda Radner's Roseanne Roseannadanna character famously quipped, "It's always something."

But back to the concept of cancer being a "gift." Is cancer an opportunity to live your life differently? Yup. But don't we all have that option, every single day? (Yup.)

Is cancer a wakeup call? Yup. Like stepping into the path of an express train could be considered an eye-opening event, cancer stops us smack in our tracks. Many of us live to tell the tale; many of us do not. All of us are maimed. But am I thankful for the train that is trying to run me over? Nope.

Let's try a different analogy: Does the deer being hunted in the forest think the rifle is a gift? Nope.
(Copyright © CamoGirl_18)

I'm here to tell you that getting diagnosed with cancer is akin to having crosshairs tattooed on your back. You will forever be a target of The Big C. And like the deer, you will try very, very hard to outrun this enemy. You'll attack it with your arsenal of surgery and chemicals and radiation and years of hormone-surpressing pills. You'll fill an emotional moat with your tears. You'll find out all too quickly who your real friends are — and you will take this realization like a bullet to the heart. You'll need a nap every day and be unable to fend off your fears in the darkness of night. You'll experience "scanxiety" any time you have to take any kind of medical test. You'll develop PTSD whenever you walk into a doctor's office (especially at a cancer center) or when you notice a new ache or pain. Of course you'll become an expert on nutrition and additives and the many, many things that are harmful in our environment and you'll try to live a cleaner life. (Good luck with that.) You'll exercise less and eat more. (And then you will exercise more and eat less.) You'll pine for the days when you could remember details quickly, concentrate easily, and be motivated in general. You'll curse the necessity of being your own health advocate 24/7, and appreciate your hands-on WedMD degree. You'll wonder how the hell you ever had time to do anything besides go to the doctor and monitor your own health.

Because in the end, it all comes down to this: Cancer is hiding like a hunter in a blind deep within the woods, holding a loaded rifle with its sights set on you and me. 

And that ain't no gift.

Friday, December 7, 2012

CANCERVERSARY NO. 2

Some things never change.

A year ago, I was dreading my first "cancerversary" and so relieved to find my feelings surrounding the date did not reach epic proportion (as I feared they would).

It's now been two years since I got "the call." And I've spent even less time thinking about my "cancerversary" this year than I did last year. Turns out December 8th — the day after the day that will live in infamy — still holds no charge for me. 
Yes, it's been two years since I learned I had cancer. But it's also been five years since I lost my father to mesothelioma, the asbestos cancer he likely acquired while serving in the U.S. Navy during WWII. Rather than rewrite history, I'll save a few minutes (OK, hours) and repost what I typed in this space one year ago. 

Instead of spending time blogging, I'll be spending the day with my mom, doing Christmasy type things, like decorating the tree. (Well, I'll be decorating the tree. She'll watch. So will my husband. Some things never change — and for that I am grateful.)

Here's my post from December 8th, 2011...

Tuesday, November 20, 2012

A FUNGUS AMONG US

We know I am a slow writer. But I'm also a slow healer — something I never knew until my bilateral mastectomy nearly 22 months ago. It's been one long, bloody (in the British sense) battle after another with this right (aka "problem child") boob of mine.

After struggling for months with delayed healing followed by the loss of my right tissue expander followed by the replacement of said expander followed by additional delayed healing, it goes without typing that I was greatly anticipating the surgery to exchange my tissue expanders for permanent implants. (Why do they make "exchange" sound so simple anyway, like going in for an oil change?) Turns out I was more afraid of this "exchange" surgery than any of the others. My butterflies felt more like...

Friday, October 19, 2012

SIX-WORD MEMOIR: PINKTOBER

I'm bringing back the Six-Word Memoir® challenge! 

Last May, our six word challenge was about cancer in general (see that post here). Many in the blogosphere joined in. Now I'd like to focus on breast cancer and Pinktober. 

So I'm challenging you...

Saturday, October 13, 2012

DON'T IGNORE STAGE IV

WHAT ARE YOU WAITING FOR? STAGE IV DOESN'T HAVE TIME TO WAIT.
  1. Visit MBCaware.org and Eisai will donate $1 to Metastatic Breast Cancer research.
  2. Sign up for MBCaware emails, and Eisai will donate another $1.
  3. "Like" the 'METAvivor' page on Facebook and another $1 will be donated.
  4. Share an image on Facebook, Eisai will donate another $1.
  5. Follow @METAvivor or Tweet with #MBCaware and another $1 is donated!
  6. There is an important video about Metastatic Breast Cancer (MBC) created by METAvivor that is phenomenal. Trigger a $1 donation to MBC research simply by visiting the MBCaware.org website. 

Friday, October 12, 2012

MENTAL MALADIES, POST CANCER

In honor of the 2nd Annual World Mental Health Day, I'm joining the blogging party (albeit a bit late) in an effort to shed some light on emotional health following a cancer diagnosis.

I'm not a medical professional, but I'm pretty sure whatever mental maladies you struggled with pre-cancer will be exacerbated post-cancer. Your usual coping tools will no longer work. Fasten seat belts. Gonna be a bumpy ride.

NOT READY, NOT SET, GOTTA GO Pre-cancer, exercise was an effective form of mental and emotional therapy for me; it helped to reduce my overall anxiety (I have always been a worrier). Post-cancer I wanted this to be the same. But after a double mastectomy, reconstruction and subsequent healing complications, movement and lifting restrictions by my doctor meant I couldn't exercise for long stretches of time. As in, months at a time (aside from walking, big whoop there). Suddenly my exercise tool was missing from my toolbox. And as you know, being inactive and burning fewer calories leads to weight gain. (Ten pounds over here.) That means more anxiety, 'cause extra weight is a risk factor not only in getting breast cancer, but in recurrence as well.

What I didn't see coming was the lack of energy brought on by a cancer diagnosis. Dealing with having cancer is obviously very emotionally depleting. Your world is turned completely upside down, you spend more time in doctor's offices than you do with your friends, and you have to practically enroll in medical school to understand what's going on in your body. (My brother calls it getting my WebMD degree.) Tack on surgeries, treatment, Tamoxifen, and the lethargy that comes from being in bed and just laying low (my BC sistahs who had chemo and/or radiation really suffer in this department)... well, you can see how easy it is to gain weight.

Some people find that they lose their appetite during times of extreme duress. Some find their appetite increases. I have experienced both of these. When you're healing, it's vitally important to eat healthy, high-protein foods. So you have to keep eating. For anyone who has ever tried to numb a bad (or good) emotion with food, this is tricky territory. My primary care physician set me straight regarding feeling bad about my extra pounds; he looked me straight in the eye and said, "Now is not the time to be dieting." What I heard? "Go ahead, eat the ice cream."

You might be thinking Hey, I can always burn off a few extra calories in the bedroom. And that might have been true pre-cancer. But lopping off body parts chews you up and spits you out onto a very dark and harrowing road, one that takes a loooooong time to find your way back from. So if you had any Body Image Issues before cancer (and lets face it, who didn't?), you'd better grab your crash helmet, 'cause you live in B.I.I. town now —where life is always under construction.

All this post-cancer anxiety may make you want to self-medicate by adding a little wine to your whine. And who could blame you? But you know pain killers and drinking make a bad marriage. You might also be tempted to keep up the pain pills even though you're not really in that much pain today. (Again, who could blame you?) But please be careful on these slippery slopes. Restrict that bad-girl behavior to a few hours, not a few weeks or months, please.

This leads me to getting a good night's sleep. Remember those innocent moments before you were diagnosed, when you'd be laying in the dark, waiting for sweet slumber to strike? Cancer strips you of that tender time. Cancer steals your sleep and hack-saws your dreams. Nighttime becomes terror time, just like when you were a little kid, except now the scary things are no longer just in your imagination. Knocking yourself out with pharmacology is often the only way to get a good night's sleep post cancer, I am afraid to say. I have had good results with melatonin too. (Always check with your doctor before taking any Rx aids, OTC or otherwise.)

As you can see, a cancer diagnosis has very little positive effect on your mental and emotional health. That's why you need to be prepared.

WHAT NOBODY TELLS YOU
When you're in attack-and-recover mode, all of the above anxieties are going on all at once. And you somehow get through it — with the (hopefully) loving support of family and friends who bring you food and flowers and cards and comfort whenever they call or stop by, which is (again, hopefully) often. Their attention and distraction enable you to temporarily cope emotionally. But what happens if you don't have such a good support system? What happens when you have to struggle through a lot of this s*** alone? And what happens when the people you have come to depend on are no longer dependable because they need to get back to their own lives? What happens then? 

Ah, the frightful secret: On the heels of healing comes disappointment — in ourselves, our bodies, our minds, our friends, our family, our life. Because, let's face it, everyone wants to get back to "normal." They need to get back to normal. And eventually that is what they all do, because they have to. And you? Well, you'll never get back to "normal." You have to find your new normal. And that sucks most of all.

So you gotta figure out which new tools you need in that lovely emotional toolbox of yours.

The first crucial thing I did to counter my mental maladies was to surround myself with other women who were diagnosed with breast cancer at the same time as I was. I joined an online group at BCO and seven of us then started our own closed Facebook group. I call these wonderful women my rubies; I wrote about them here. And I couldn't have made it through all this BC crap without them. They understand everything I am going through. They lift me up in my darkest hour and cheer me on in my happiest moments. We are always there to listen to each other, 24/7. Though we live in different parts of the country, I was fortunate enough to meet two of my rubies this year, and hope to meet the rest of these wonderful women in 2013.

The second crucial thing I did for my emotional health was to start this blog. In the beginning I was writing to no one, for no one. Because no one knew I had started this thing. Very few people who knew me in "real" life knew I was blogging about life post-cancer. I didn't tell them because I needed to feel free to write about whatever was troubling me without worrying that someone might be offended. Of course, that still happened anyway. (One of my closest friends told another close friend, Be careful what you tell her, or she'll blog about you!) Oh well. The point of this blog was never to please anyone other than me. Call it selfish; call it self-preservation. I needed to get my thoughts and fears and experiences out of my head; it was literally the only way I could make sense out of what I was going through. Writing it out somehow brought me great clarity.

What I didn't expect was to find a rich, wonderfully supportive breast cancer blogging community out here in cyber city. Oh my! Besides finding my rubies, this has been my greatest post-cancer joy. While I have yet to meet any of my "bloggy" friends in person, I feel a great kinship to a great many of them. Just take a look under my "Favorites" heading to find some really inspiring ladies, and even a few men. They work through their mental maladies daily. I'm willing to bet they can help you too.

I still haven't told the majority of people in my "real" life about this blog. And of the ones I have told, very few read it. (Guess you have to have gone through cancer in order to truly relate to it.) So while I don't even know who is reading this, I know that you live in 87 countries around the world and counting. And that completely blows my mind.

Blogging has become a positively essential outlet for my emotional health. I'm hoping it helps you in some way, too. Isn't that what community is all about?

Wednesday, October 10, 2012

31 TRUTHS ABOUT BREAST CANCER

Hats off to the incredible National Breast Cancer Coalition (NBCC), the brains and brawn behind the mission to end breast cancer by January 1, 2020
  • How do they plan to do it? Click here
  • What progress has been made so far? Click here
  • Want to help the NBCC further their efforts? Click here
And, finally...

Wednesday, October 3, 2012

SUGARCOATING CANCER

It's Wordle Wednesday. And it's Pinktober. That means only one thing: It's time to stop sugarcoating cancer. Enough already. Breast cancer ain't pretty and it certainly ain't pink. (Well, I take that back: The only thing pink about breast cancer is our scars.So rather than telling you how I feel about the deluge of pink that threatens to drown us all this month...

Monday, October 1, 2012

ACT WITH LOVE

Today is the first day of Pinktober. Rather than rehash my feelings about the pinkification of breast cancer (read my October 1st post from last year here for that), instead let's act with love and make history together by signing up for the HOW (Health of Women) study. 
What is HOW? It's an international online research study that will track thousands of people over time in an effort to determine not only what causes breast cancer, but how to prevent it.
Who is HOW? Dr. Susan Love's Research Foundation is behind this ground-breaking study.
Who is eligible? EVERYONE! It doesn't matter if...

Wednesday, September 26, 2012

WORDLE WEDNESDAY

It's Wordle "Word Cloud" Wednesday! (To participate, see the last paragraph.) I had an interesting week that involved a dinner where I had to be "on" and a dinner where I got to be "off." (Guess which one was more enjoyable.)

Yesterday, I saw my plastic surgeon for my three-week post-surgical checkup. He is pleased with my progress, and...

Tuesday, September 25, 2012

SOLO SOJOURN

Each time I am about to have surgery, I make a solo sojourn into the mountains. I take no prisoners, no compadres. I have to do this alone. (Just like surgery.)

It's my attempt to quiet my chattering mind, but it also gives me a calming memory from which to draw upon during the various periods of anxious waiting, waiting, waiting that I experience on surgery day.

First, there's the waiting for water I cannot swallow because it's after midnight. Or the cup of joe I smell in the morning as my husband sips it while reading the paper before we leave. I am too nervous to focus on words.

Then there's the waiting in the passenger seat of our car as we drive to the hospital in the inky pre-dawn light...

Monday, September 24, 2012

A TALE OF TWO SHANNONS

I want to give a shout out to two Shannons. Both are breast cancer sistahs that I met online. They don't know each other, but were recently "introduced" online via yours truly. (I met one of them in person earlier this year, and hope to meet the other one day soon.)

Shannon #1 lives down South and is six weeks out from surgery to correct a botched reconstruction.

Shannon #2 lives up North and is in surgery today, also to correct a botched reconstruction.

Both of these women had completed their reconstructive journeys...